Sunday, January 15, 2012

Hello and Welcome

Hello and Welcome to our blog. This is our blog and our little world to raise awareness and to give a glimpse of life with a toddler with Autism. 
My daughter C is 24 months old August 2011 are lives changed forever, C was diagnosed with Autism Spectrum Disorder.
For those of you who do not know what Autism is here is a little information.




Autism is a complex developmental disability that causes problems with social interaction and communication.  Symptoms usually start before age three and can cause delays or problems in many different skills that develop from infancy to adulthood.



The main signs and symptoms of autism involve problems in the following areas:
  • Communication - both verbal (spoken) and non-verbal (unspoken, such as pointing, eye contact, and smiling)
  • Social - such as sharing emotions, understanding how others think and feel, and holding a conversation
  • Routines or repetitive behaviors (also called stereotyped behaviors) - such as repeating words or actions, obsessively following routines or schedules, and playing in repetitive ways
The symptoms of autism can usually be observed by 18 months of age. 


My daughter C is on the severe side of the Spectrum why that is we may never know. My daughter c is the classic poster board child for Autism. She is 24 months old cognivately functioning at about 12 months old. She
uses sign language to communicate along with an Ipod Touch. My daughter rocks, head bangs, bites herself and has major meltdown's in public. Going to a grocery store sends my daughter in a panic mode she covers her ears and screams the entire time in the store.
My daughter has no play skills what i mean such as that is my child has a ton of never ending stimulating developmental yet fun toy's and she does not play . My daughter C struggles daily as a mother seeing my child struggle such as she does breaks me heart.
I never did drug's when i was pregnant, i never drank while i was pregnant. I ate very healthy when i was placed on bed rest i followed doctor's orders. So my daughter having Autism has not been an easy journey. I am a single mother raising C as some may relate that can be rather challenging on so many day's. 

But raising C has been an expereince that has taught me more then i could even possible learn in school. I have learned to stop and appreciate the little thing's in life , i have learned how precious my child's voice is and how precious life can be.
C has brought a whole new world to my eyes, i see life is new perspectives and i am so thankful to call myself her mommy :)



Defending myself

My point of this new blog entry is to defend myself and to express my feelings. i am not trying to hurt anybodies feelings or start any problems.
These last few month's have been rather hard on us with my daughter being newly diagnosed and learning to live life in a whole new perspective.
I used to be a member of a SN community A4cwsn. I joined the community to learn about how technology is helping children with Autism Spectrum Disorder and to learn about Apps. I was in hopes of building a support network as well.
I am new to Autism my daughter is 24 months old and was diagnosed in August 2011 with Autism . It has been a roller coaster of emotions, meltdowns and uncertainty's in our life . We however are learning to adjust. 
I have learned to apprecciate the little thing's a whole lot more, i have learned to stop and breathe and not be in such a hurry in life.
I have also learned some very unfortunate thing's as well.

I am just gonna cut straight to the point, i have been very quiet lately. I used to love blogging and working on spreading awareness . But some of the parent's i met on A4cwsn have accused me of lying to people, scamming people and that i am making up my daughter's problems.
I should NOT i repeat NOT have to defend my daughter's diagnoses. But apparently in this case i do.
August 2011 i was handed papers of my daughter's ADOS scoring and i was told by the developmental pediatrician that my daughter scored within the brackets of meeting 13 of 13 criteria for NYS for being on Autism Spectrum Disorder.

I have been staying quiet, i have lost many friends and i am feeling alone in this world of raising a child with Special Needs. How can a SN parent be so cruel to another SN parent?
'You do not live with my daughter, therefore you do not know her . You do not see me in tears everynight 
because i wonder why my child? You do not see my daughter struggling on a daily basis to communicate, to relate to children her age. You do not see what i see nore do you walk in my shoes.
So here i am blogging once again because i feel as if my support system is gone, and i am sure many can relate it can get very lonely at times.

So i am going to defend myself fully, if you question anything i say please take a walk in my shoes and then judge me.
I have been nothing but respectful , honest and very kind to everybody. I have never lied about my child nore have i ever scammed anybody.
Now i shall apologize if this offends anybody , i am just simply just defending myself . Last thing i must say is if you have a problem with me please come to me and discuss it. If you do not like what i post i apologize but Facebook has been my biggest support system since my daughter has been diagnosed.
I will no longer allow other's to get to me anymore. Thank you to all who have stuck by my side and have been my biggest supporters. Your friendship means so much to me.