These last few month's have been rather hard on us with my daughter being newly diagnosed and learning to live life in a whole new perspective.
I used to be a member of a SN community A4cwsn. I joined the community to learn about how technology is helping children with Autism Spectrum Disorder and to learn about Apps. I was in hopes of building a support network as well.
I am new to Autism my daughter is 24 months old and was diagnosed in August 2011 with Autism . It has been a roller coaster of emotions, meltdowns and uncertainty's in our life . We however are learning to adjust.
I have learned to apprecciate the little thing's a whole lot more, i have learned to stop and breathe and not be in such a hurry in life.
I have also learned some very unfortunate thing's as well.
I am just gonna cut straight to the point, i have been very quiet lately. I used to love blogging and working on spreading awareness . But some of the parent's i met on A4cwsn have accused me of lying to people, scamming people and that i am making up my daughter's problems.
I should NOT i repeat NOT have to defend my daughter's diagnoses. But apparently in this case i do.
August 2011 i was handed papers of my daughter's ADOS scoring and i was told by the developmental pediatrician that my daughter scored within the brackets of meeting 13 of 13 criteria for NYS for being on Autism Spectrum Disorder.
I have been staying quiet, i have lost many friends and i am feeling alone in this world of raising a child with Special Needs. How can a SN parent be so cruel to another SN parent?
'You do not live with my daughter, therefore you do not know her . You do not see me in tears everynight
because i wonder why my child? You do not see my daughter struggling on a daily basis to communicate, to relate to children her age. You do not see what i see nore do you walk in my shoes.
So here i am blogging once again because i feel as if my support system is gone, and i am sure many can relate it can get very lonely at times.
So i am going to defend myself fully, if you question anything i say please take a walk in my shoes and then judge me.
I have been nothing but respectful , honest and very kind to everybody. I have never lied about my child nore have i ever scammed anybody.
Now i shall apologize if this offends anybody , i am just simply just defending myself . Last thing i must say is if you have a problem with me please come to me and discuss it. If you do not like what i post i apologize but Facebook has been my biggest support system since my daughter has been diagnosed.
I will no longer allow other's to get to me anymore. Thank you to all who have stuck by my side and have been my biggest supporters. Your friendship means so much to me.
Great blog. Honest and heartfelt. I am proud to call you my friend
ReplyDeleteThank you so much, glad to call you a friend as well. May god bless you
DeleteI hope you find a new support system very soon. The attacks on that facebook page have been horrific to many people and no one deserves the mob mentality that strikes out against them there. That page is anything but supportive, helpful, or kind anymore. Good to see you blogging again! Hang in there... new systems of support and friendships are just around the corner for you! They always appear when we most need them. :)
ReplyDeleteThank you Jodi, exactly why i needed to post because i no longer can stay silent. Thank you for being a true friend indeed :) May god bless you
ReplyDeleteEvery day will be a mixture of exhaustion, fear of the unknown and blessings of the small things accomplished. You learn to celebrate things that most take for granted quickly. For those who have never walked in your shoes they can't understand. They can empathize, they can care, but they can never understand the tasks before you daily. Autism is unique in each child. Communication is often non existent in verbal and learning to socialize is a monumental responsibility for a parent to teach. But my friend, it can all be done!! It takes sometimes years to make the smallest headway, but you will do it together. As for people being nasty, it boggles my mind that anyone could act as you have stated, that is battling the same battle. All I can say is walk away at a fast pace and don't look back. You or your daughter do not need negativity! You need support from those who have walked just a little a head of you. If you ever need to talk, scream, cry, laugh or share in one of those incredible moments of victory you know where I am. God gives us these challenges with an open heart and mind. Through these challenges we learn truly how blessed we are and learn to not take those blessings for granted! You will soar with your daughter in the journey a head!
ReplyDeleteSN Mummas need to stick together! I can never understand how someone who KNOWS how tough our lives can be would choose to add to our stress instead of offering support and understanding.((HUGS)) Marie.
ReplyDeleteI love your post. My son is now 9 years old has his struggles with language but is making progress for a child with smack in the middle of autism. I also teach high school students with severe autism. If you have a question or if I ever can help please feel free to ask me a question. It is a different road to walk.
ReplyDeleteThank you ladies for the support it means so much to me and my daughter.
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